Friday, September 28, 2018

RESEARCHERS, SURVIVORS, ADVOCATES AND PHYSICIANS CONVENE TO DISCUSS INNOVATIONS IN LUNG CANCER RESEARCH, TREATMENT AND ADVOCACY AT THE LARGEST-ATTENDED WORLD CONFERENCE ON LUNG CANCER


TORONTO, Sept 24 (Bernama-GLOBE NEWSWIRE) -- Patients, survivors and advocates joined researchers and physicians from across the globe to discuss the future of lung cancer at the International Association for the Study of Lung Cancer’s (IASLC’s) 19th World Conference on Lung Cancer (WCLC) in Toronto, Canada. The conference’s first press briefing highlighted the record-breaking number of registered attendees (over 7,300), reviewed patient-caregiver communities working to accelerate research, evaluated survey data on the emotional needs of lung cancer survivors and underscored the impact of comprehensive genomic profiling on patient care.

The press conference opened with a welcome message from conference co-presidents Natasha B. Leighl, M.D., BSc, MSc; Andrea Bezjak, M.D., FRCPC, MSc; and Gail Darling M.D., FRCSC, who have worked tirelessly to make this year’s conference in Toronto highly successful.

Oncogene-driven patient-caregiver communities creating new paradigm for non-small cell lung cancer research
Recent review of patient-caregiver communities focusing on non-small cell lung cancer (NSCLC) with genomic alterations showed that these groups are improving outcomes by supporting patients and caregivers, increasing awareness and education and accelerating research.   

Patient advocate Janet Freeman-Daily, co-founder of the community known as The ROS1ders, Robert C. Doebele, M.D., Ph.D., of the Division of Medical Oncology at the University of Colorado and Christine M. Lovly, M.D., Ph.D., of the Vanderbilt University School of Medicine, worked as a team to identify the impact of oncogene-driven patient groups.

“These oncogene-driven groups created by patients and caregivers are ushering in a new era for lung cancer research partnerships,” said Freeman-Daily. “By collaborating with researchers, clinicians, advocacy groups and industry, we are accelerating research into our own diseases.”

Read the full press release here.

Survey data from Lung Cancer Alliance highlights the unmet emotional needs of long-term lung cancer survivors
Recent survey data showed lung cancer survivors indicate that emotional effects, unlike physical impacts, are more problematic for long-term survivors after five years. Maureen Rigney, a licensed clinical social worker and Director of Support Initiatives for Lung Cancer Alliance (LCA), and her team led an online survey on the treatment and smoking histories of 820 respondents.

“Symptoms like shortness of breath and fatigue are just a few of the physical side effects that can occur during and post treatment,” said Rigney. “Emotionally, lung cancer stigma and anxiety don’t end when treatment is over.” 

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